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Monthly Archives: September 2011

IV Update

Well, it looks like this IV did just fine!  I had twice on Tuesday just the barest smidge of a headache, but nothing more than what a normal one would be.  I’m not sure if it was due to the IV.  The only other thing was the crash.  Because these IV drips give me so much energy, when I come back to what is “normal” for my body right now, it seems really low.  This IV energy boost only lasted about 6 hours, so by Tuesday night I was dragging, bad!  It’s kinda continued through Wednesday, and I’m thinking that today I should start to get back to normal.  Kinda stinks, but the long-term benefit of these IV’s is worth it.  Once I get up to the full dose in the IV bags, the energy boost will likely last about 48 hours.  Those are the days that I schedule a TON of work to be done by me, because I know I’ll have the energy to do it!  🙂

The next IV is in three weeks.  The plan right now is every three weeks, and then when things calm down in my body and level out, we’ll stretch the IV’s out a few more weeks until I’m at a maintenance level, probably one IV every 8 weeks.

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Posted by on September 29, 2011 in Crohn's Journal, Doctor Journal

 

Weeee……IV!!!

I got hooked up this morning for my first IV drip in about a year!  I had to drop them because of money, and the last one gave me a crippling migraine for 24 hours.  I was a bit nervous with this one as I wasn’t sure how my body would react to it.  We are only doing half-doses of all the good stuff, and we will slowly build my body back up to the full shebang.  I’m REALLY looking forward to being back on these fulltime again.  They give my body so many of the good things it needs (vitamins, minerals, anti-inflammatory drugs, and more!), and I believe they were instrumental in getting me back to health.

What are they?  It is called some big official name like “immunomodulation.”  It’s also called nutritional therapy because, with Crohn’s, your body does not absorb all the nutrients it needs and this gives it a boost, straight into the veins.  We needed to get me back on these because of the Hashimoto’s auto-immune response going on inside of me right now.  It’s back up to levels that indicate a pretty decent attack is happening against my thyroid, and we want to stop it before it gets much worse.

In the meantime….my body seems to be reacting well to this one.  No hint of a headache.  Hooray!  They one thing I forgot about was the boost in energy.  I feel like I’m racing around and have so much energy, which is great!  I just don’t have enough hands and arms to take advantage of it.  Sometimes, after these shots, I feel so….normal again.  I have a “real” amount of energy to work with.  I forget how tired the Crohn’s can make me….

The other funky thing about these shots, and I’ll just be real here….is the flourescent pee.  I’m not kidding!  For some reason it’s just really, really, really, fluorescent yellow for about a day.  Probably TMI for some of you, but that’s okay.  I like to be real.  🙂

 
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Posted by on September 27, 2011 in Crohn's Journal, Doctor Journal

 

Blood test results, thyroid

The latest results are in and, drum roll please…..my thyroid seems to be working A-okay!  Hooray!  Then why, I asked my doctor, am I still having anxiety and racing heart, which is not normal to me?  Well…there is a perfectly good explanation for that…..

Basically, even though my thyroid levels are where they should be, the little auto-immune buggers that attack my thyroid continue to ramp up their attack.  It’s an auto-immune disorder called Hashimoto’s Thyroiditis and it basically entails your body attacking the thyroid gland.  This number has been on the rise the last few tests, which is not what we want to see.  The doc told me that if we don’t get it under control (and it’s about as high as we can go before it tips the scale to the bad side of what we don’t want) it could lead to a Crohn’s flare.

Wonderful!

I’m joking……but in good spirits.

When I was able to keep up with the full regiment of homeopathic treatments, everything was kept pretty level.  The symptoms were almost non-existent, the blood tests kept coming back level, and the inflammation went away.  With these auto-immune diseases, it’s a constant balancing act to keep things as level as possible, for as long as possible.  Right now I’m feeling okay, but I know I’m not as good as I was at this time last year.  Bummer….

So, the process I need to go through now is getting back on the IV’s once every 3 weeks.  These will give me a boost of much-needed vitamins and minerals and more importantly, will have a big anti-inflammatory component that should help in calm down the attack that’s going on right now.  I’m hopeful to catch it soon so that it doesn’t turn into anything worse!

Ah well…..it’s all for His glory anyway!  Life is just fine…regardless of what this silly diseases throw my way!

 
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Posted by on September 21, 2011 in Crohn's Journal, Doctor Journal

 

Dilemma

I have a debate running through my head about this post, and about the diseases running through my body.  I wanted to title it “Not my friend…” but figured that wasn’t really true.  I just couldn’t write this post with that title.  But at times, when you have your own body attacking itself every second of every day, you can come to see your body as not your friend at all.  A friend does not attack something it loves with the intent of destroying it. Auto-immune diseases attack the body, non-stop.  There is no way to stop the onslaught meant for destruction.  

But, even though my body is not working the way it should, I still can’t say it’s “not my friend.”  God created me, and this body, with all its flaws both inside and out.  Yes, I can get frustrated with it at times, and want to tell my stomach “Will you please stop wreaking havoc inside of me?!?!!?!?”  🙂  But to call this body my enemy would be to call everything He made inside of me and all of His promises to me…..false.  I just can’t do that.  I have to believe.  Without my hope and trust in God, I would be lost.  I need to focus on the health and the life and the joy He has given me, instead of the physical ailments.  This body is just a “tent,”- it’s not my permanent home.  Someday my body will be free of these diseases.  But my spirit is already free because of Jesus who has saved me and healed me.

I believe…..

 
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Posted by on September 19, 2011 in Crohn's Journal

 

Never Once….

There is a fabulous song we are singing this weekend at church called “Never Once.”  It’s only the second time I’ve heard this song, but I’ve fallen deeply in love with it.  It has a simple yet very deep message of God’s love for us as we walk through this life.

Never once did we ever walk alone

Never once did you leave us on our own

You are faithful, God, You are faithful

Not one single step in our lives was taken without Him by our side.  No, we might not always feel God walking next to us.  Sometimes it feels like we are walking in a desert without a drop of water and not a soul to be found on the horizon.  But the truth that I’ve found in this life is that, no matter where I’ve walked, He has always been there.  Through the good and the bad, His hand has always been on my life, with me every step of the way.

I believe this truth to the deepest part of my core.  A few years back, I had this message written on my leg, where I can always look down and remember what He has done.  It is a picture of two hands, my hands, cupped in a vision of giving and praise.  When I tell people about it, I tell them that God’s love for me is a very Pure and Simple love.  That in my life, these have been His hands, carrying me and holding me like you would a small bird.  His love will never leave me.  There is nothing that I can ever say or do to take His hands, and His love, away from me.  At the same time, my message is one of Pure and Simple love, trust, and worship.  Because He has never left me, I will never leave Him.  I will ALWAYS trust Him.  He has NEVER let me down.  And because He has been faithful, I will forever hold my hands up in surrender and worship to Him.  Pure and Simple….

Scars and struggles on the way

But with joy our hearts can say

Never once did we ever walk alone

Carried by Your constant grace

Held within Your perfect peace

Never once, no, we never walk alone

 
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Posted by on September 17, 2011 in Crohn's Journal

 

Yo-yo!!!

Okay, I WILL make this post a happy one!  I really don’t like that this disease often seems to be only about what bad stuff is going on.  So many people with these type of diseases seem to bemoan the fact that their body is not working right, and I know in my blogging I’ve told you the story of this disease.  HOWEVER….I never want this to be a “poor me, look what’s happening” sort of blog.  So….I’ll tell you what’s going on, just the facts, and then I’ll tell you where my mental state is.  🙂

I’m getting my blood taken again tomorrow.  2nd time in just over a month.  Good thing I’m not afraid of needles or blood.  🙂  We are wanting to keep pretty tight tabs on my thyroid.  If it’s down, I’m brain slow, body sluggish, tired, and cold.  Sometimes a bit down for no reason.  If it’s high, I have a racing heart that feels like anxiety going on most times, and I’m NOT an anxious person!!!  It was low for about a month, then it seemed to level off for about 2-3 weeks, and now this past week I think it’s shot up again.  I laugh and imagine my health in terms of the thyroid as being on a bungee-cord ride.  Up, down, up, down, up, down….wow!  I’ve gotten how to deal with this Crohn’s pretty well.  This thyroid stuff has me buggered though.  I’ll throw in the obligatory “ugh” now, just for impact.  🙂

Because I don’t want to dwell on the negative and what crazy stuff my body is doing, I speak life and normalcy in my day.  I’m a firm believer that if you speak the negative and dwell on the bad, things will get worse.  So, for today, whether I feel it or not, I’m going to smile.  I’m going to laugh.  I’m going to sit on my front porch with a book and a cup of coffee and enjoy the sun.  I’m going to sing….because I can!  I might even sit on my piano and play a few tunes.  I WILL NOT let this disease ruin my day, nor my life.

I’m trying to create a balance with my blogs.  I know in the past few months there has been quite a few posts that would seem “down” and focusing on the bad.  Just know that even though I may be telling about what’s going on, that does not mean that life is all bad or that I’m down.  I simply feel I need to put words to this disease, and the struggles that we are facing in life.  I know it’s all going to be okay.  How do I know this?  Because my hope does not rest in the things of this world.  They rest in Him who saved me, created me, and loves me.  Amen!

 
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Posted by on September 8, 2011 in Crohn's Journal

 

better….

Okay, this morning I was feeling better.  The pain only lasted about an hour yesterday (though that was quite enough!).  This morning my gut felt tender and sore, like you’d just done 100 sit-ups and had an upset stomach to boot.  I took it easy and all seemed to be getting back to normal.  But then I ate some more cauliflower taters for lunch, and within 3 1/2 hours the pain was back, so I’m guessing those were the culprit.  RATS!!!  I love the cauliflower mashed potatoes, and it is a treat for me.  If my body has decided, for whatever reason, to reject those now…..I’ll be a bit bummed.  I’ll wait a week or so and then try them again.  Tonight, my gut feels okay.  It’s still tender, and there are small twinges of minor pain every now and then.  Just enough to remind me that this disease is still here, inside of me.

Instead of solid food for dinner I made a veggie/fruit juice and drank that.  It had all sorts of good things in it, including ginger and parsley, which I’ve heard are anti-inflammatory foods.  I forgot the garlic, but I’m sure my family was fine with that.  I had a bit of homemade yogurt and blueberries later on, and those seemed to do fine.  I guess we’ll take tomorrow how it comes.  I’ve never had what most people would call a “flare” with this Crohn’s, and I feel blessed for that.  There is still some tension and fear, whenever something is not right inside of me, that my system could be going in that direction.  A serious flare could mean debilitating pain, hospital visits, or a host of other things that are simply not fun to deal with.  That’s one reason why I took the Tylenol PM last night….to just get my mind to rest.  I’m pretty good at shutting my brain off and not worrying about things (I’m pretty even-keel) but sometimes it doesn’t hurt to help that along just a bit!

 
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Posted by on September 1, 2011 in Crohn's Journal